Skip to main content

Explaining Problems

I spoke to the Clinician again, complete waste of time of course. She's not going to change her mind and I can't say I'm surprised. So either I speak to the Patient Advisory Liaison Service which will be no more effective in persuading her to change her mind, but it's what she's duty bound to recommend, or I go back to the GP and ask for a second test. 

How that will happen I don't know. She is a member of the only local service (other than private services that of course won't be cheap - nor anything close) and previously said that a second opinion was out of the question because she had discussed it with her colleagues and they'd all decided. Naturally.

So I will have to go back to the GP, which I will be doing in two weeks. I'm not remotely confident, they don't understand these issues at all. The fundamental problem with these sorts of issues (let's call them mental health problems, it's so much easier) is that they are very personal. An individual grows up with his mind the way it is, particularly in the case of issues such as Aspergers and the like. However your brain is wired, it forms the way your experience of life is shaped. That means you don't know any different and you don't know, necessarily, whether what you experience is problematic because you have no basis for comparison. So you go through life struggling - a bit like a blind person bumping into things they can't see. 

It's only as an adult, or t least with the wisdom of years, that you start to think "hang on, other people aren't experiencing things the way I do. No one else seems to find life such a struggle intrinsically". (That is, there are people who do struggle, obviously, way more than I, but those struggles are born of specific conditions, usually imposed - benefit sanction for instance.) So you start to examine and learn what might be the cause, even if your studies are not informed by proper knowledge of the field.

However translating those experiences into a clear soundbite for a GP or a clinician, or even a Work Programme god botherer, is difficult - particularly when you have to penetrate the prejudices of such people. So you find yourself banging your head against people who have been conditioned, particularly in respect of the unemployed, to downplay these problems. Nevertheless the reality remains and the individual struggles.

Until mental health provision can adequately deal with these difficulties it cannot even begin to provide help. When you further impose cultural values (ie "get a job, that will cure you") and do not actively hear what the patient is trying to tell you. Or when you have a diagnostic process that can't deal with adults and doesn't make an effort to tease the full scope of the patent's difficulties you aren't going to get anywhere. I don't think the testing process did either of those things: a picture book of flying frogs maybe a recognised tool (I’m not suggesting the clinician was a quack), but it's no good for adults for example, especially when there is no provision on  hand for dealing with adults who cannot provide an objective life experience to be cross referenced. My life experience is my own, it's in my head; it's not separate from me.


Popular posts from this blog

I Fucking Hate the Work Programme

That did not go well.
My legs were wobbly to begin with as I closed in on the church that passes for the office of the employment wing of the Salvation Army. My appointment was 3 to half past. I really did feel sick. Pretty early on, when he asked for the forms he gave me last time to fill in, I knew that what was arranged on the letter (a short interview with me bringing my CV and jobsearch) was actually going to be much longer. I also knew that, come half three when I had to leave to catch my bus back ten minutes later, I was going to have problems. 
Unfortunately, though more for me I fear, it never got that far; at 20 past he terminated the interview citing my apparent 'putting up barriers' as the reason not to continue. This was because I refused consent for him to keep my CV. I asked why he needed it and offered, three times, to show it to him (that's all), he said it was to apply for jobs on my behalf. The EEC's need this information.
What's an EEC? Employm…

I Hate James Bartholomew

Know the Tory mindset: according to these creatures welfare breeds dependency. Meanwhile they do not want to set a minimum wage, they do not want to create legislation to protect the un - and under - employed from the predations of the system they benefit from. That word is chosen deliberately, because they like benefits for themselves - the ability to sack whom they like, when they like and how they like. In this UKIP are the same. This is the febrile heart of the right wing.
Yesterday on 5 Live's laughable morning phone in - bigots drink for free - another right wing excuse for a human, James Bartholomew, revealed another aspect of their nasty prejudice and staggering ignorance. Not surprisingly this vile creature was once a banker. He writes (if one can call it that) for the Telegraph and though I don't know the content of his ballot paper, I dare say I can guess. He props up every tory myth about the unemployed and welfare with dull witted aplomb.
He believes people have …

Magical Thinking

Well that's that for pursuing a diagnosis for Aspergers or anything remotely similar.

I contacted the Patient Advisory Liaison Service (PALS) to try and sort this out after being lied to by the clinician regarding referring me to the ADD (Attention Deficit Disorder) people. That never happened and she continues to deny saying she would. Of course I cannot prove this and so the patient-doctor dynamic kicks in: I'm the lowly patient, she's the expert doctor, her reputation versus mine and so who wins?

I could make a complaint, but what would be the point. I might get a nice letter in a few months time saying sorry in a mealy mouthed way, but it doesn't get me any closer to what I need. That being a diagnosis, a formal, written and recorded, recognition of the issues I deal with. Lacking that, dealing with the systems in society, chiefly the DWP, becomes more difficult. Unfortunately the medical profession doesn't seem to care about that.

We have a society fuelled by …